Tag Archives: ALS

The ALS Ice Bucket Challenge: Why it really matters

There have been mixed reactions to the ALS Ice Bucket Challenge videos. Some people find them gimmicky, some people find them cute, some people don’t care at all.

First of all, what is ALS?

Amyotrophic lateral sclerosis (ALS)—also referred to as motor neurone disease (MND), Charcot disease, and, in the United States, Lou Gehrig’s disease—is a neurodegenerative disease with various causes. It is characterised by muscle spasticity, rapidly progressive weakness due to muscle atrophy, difficulty in speaking (dysarthria), swallowing (dysphagia), and breathing (dyspnea). ALS is the most common of the five motor neuron diseases.Roblox HackBigo Live Beans HackYUGIOH DUEL LINKS HACKPokemon Duel HackRoblox HackPixel Gun 3d HackGrowtopia HackClash Royale Hackmy cafe recipes stories hackMobile Legends HackMobile Strike Hack

Anthony Carbajal (the man in this video) not only participates, but has something else to say too. I will warn you, this video gets very serious, but I think it’s important to not forget the reality of this disease.

As Anthony points out, ALS afflicts a small portion of the population, so drug companies aren’t as inclined to try and develop a cure because it won’t be as profitable. But people are still suffering, and dying, from ALS, and they absolutely deserve any support you can give them. Consider sharing this video, not to scare or upset people, but to remind them that for all the “cute” ice bucket challenge videos, what are we really trying to address.

Jason Becker: Not Dead Yet (Inspirational Documentary)

One of my biggest fears, moreso than public speaking or even death, is to lose control of my body or muscles. To lose the ability to move under my own power. Being a musician, a writer and a big fan of exercise (walking, running, biking, etc), to lose physical control would mean a sudden and drastic change in my life. Of course I have seen countless YouTube videos of people without arms and legs or completely wheelchair bound who are still living very full, happy, productive lives, so I know I could and would adjust if the worst did happen. In the meantime, I really do try to appreciate what I have and make the most of it.

Jason Becker is an example of this. He was an up and coming world class guitarist, and then he contracted ALS (Lou Gehrig’s disease) and slowly lost virtually all physical ability. But music was so important to him, that (with help), he found a way to keep doing it:

From Wikipedia:

The film was a New York Times Critics’ Pick with Neil Genzlinger stating “This heartfelt documentary is also, more subtly, a tribute to the squadron of caregivers that has enabled Mr. Becker not only to survive for an extraordinarily long time but also to continue to compose music, using virtually the only part of him that still moves, his eyes.”

After first seeing this almost 2 years ago, it definitely put a lot of things in perspective, and I realized “I have absolutely NO excuse for not doing the things in my life that I want to do”. And I hope after watching this, you might feel similarly. Carpe diem my friends.